Sunday, October 08, 2006

Newspaper Article

On September 28th Shaylee was in the Newspaper. It's a great article! I don't have a scanner so i can't add the pictures to go along with the story. The man that came to interview us didn't know a thing about Down Syndrome (he asked how long Shaylee has Had Down Syndrome) Hopefully he waled away from the interview with a little more information.

The Story is as Follows.

Down, far from out
Syndrome doesn't have to impose limits, family says.

By Mike Reuther

Miranda Sarbaugh of Jersey Shore wants people to know her daughter is really no different from other children.
Shaylee, 3, was born with Down Syndrome.
Although Shaylee has Cognitive problems, as is normal with the congenital medical condition, she displays the curiosity and eagerness to learn of Typical 3-year olds.
"she has some delays, but nothing major" Miranda Said.
Earlier this year, Shaylee was selected to be in a film that kicked off the National Buddy Walk, an event sponsored by the National Down Syndrome Society to bring awareness about Down Syndrome and raise money for research. Shaylee appeared in the film for about 10 seconds.
Last month, the family went to New York City for the Buddy walk. They saw the kick off film on a jumbotron video screen in Time Square. They also participated in in the walk in Central Park.
A local walk is scheduled for Sunday, Oct. 8, at 1:15 in this citys Memorial Park.
In New York, the Sarbaughs met Chris Burke, an actor with Down Syndrome who played Corky Thatcher on the former ABC-TV show "Life Goes On".
"He's very talented" Miranda Said.
Burke, an Author and Musician, is just one example of how Down Syndrome does not necessarily liit people.
The living room of the Sarbaughs home is Shaylees playground, where she springs from one activity to another with boundless energy.
She might spend a few minutes playing on her toy stove, While the next moment will find her scribbling with a magic marker or spending time with dolls.
"She's a smart girl and we expect her to do great things" said her mother.
Miranda and her husband John fully expect their daughter to be enrolled in public school with other children her age in a couple of years.
She already knows her ABC's and works with therapist to help reach her full potential.
"Children with Down Syndrome are fully capable of doing anything they put their mind to" Miranda said.
Some children with Down Syndrome even end up going to college, Shaylees father noted.
Shaylee, Miranda added, is a persistant child and will repeatedly try to understand something she doesn't initially grasp.
Down Syndrome occurs when a person is born with three rather than two copies of the 21st chromosome, altering the course of development, acording to the National Down Syndrome Society. It is the most common chromosomal abnormality, occuring in one of every 800 to 1,000 babies.
Early Intervention is important. Therapy, a stimulating home environment and postive support from family, friends and the community are vital to helping chilren with Down Syndrome live full lives, according to the National Down Syndrome Society.
Perhaps Shaylee's most obvious problem is her problem with talking, with most of her words coming out garbled.
Children with Down Syndrome face an increased risk for certain medical conditions such as congenital heart defects, respiratory and hearing problems. Alzheimer's Disease, childhood Leukemia and Thyroid conditions.
Fortunately for Shaylee the life expectancy for those with Down Syndrome has increased since 1983 from age 25 to 56.
Her parents feel that their daughter has been nothing but a blessing since she was born.
Shaylee's name is Irish for a place where Faeries gather, according to her mother.
"And she's a maical little girl. She's brought so much into our lives" she said "We celebrate the small things. We don't take anything for granted"

Williamsport Sun Gazette

7 comments:

Anonymous said...

Oh Miranda, what a wonderful story!!! I knew the interview would go well. Your a pro now, so next interview I am sure will run even smoother.

amy flege said...

miranda that is an awesome article!!!!so glad you posted it!!!

mum2brady said...

Miranda - this is so cool! I love it! What a great and positive article. Shaylee is sure to touch and educate so many people - she has a great start, and she's only 3. She will most definitely do great things! Thanks for sharing!

Michelle said...

thanks for posting the article and helping to raise awareness!

LeslieAnn said...

This is absolutely beautiful! What a great gift that Shaylee was able to share...I am amazed at how little is still known about Ds. I'm glad this writer educated himself as well as countless others. That is such a blessing that you and Shaylee were a part of.
:)

Tammy and Parker said...

What a great article! What an amazing little one you have been blessed with.

jotcr2 said...

Great article. Very positive. I love the name Shaylee. Sheena is Irish too, although I don't really know what it means - will have to look that up. Hubby is Irish, so an Irish name was a must.